1. I saw you speak at WWWG this year and was amazed by your story and relate to it more than you know. I’ve sat at the doctors’ offices and heard the words, “We don’t know how to help.” My husband has a birth defect called Arnold Chiari Malformation. They normally find this in small children and they can repair it and move on. Unfortunately, they did not catch his and so a football injury in HS was how he found out he had it. They did three surgeries in 1 weekend and one was botched so badly that it left him with no feeling in his right arm and no color vision except for black, white and gray but his life was spared. Years later he started having pain in the arm he can’t feel out of. They diagnosed him as having phantom limb syndrome even though his arm is still there. In 2009, after dealing with horrible chronic pain for years and seeing 9 different doctors who all told us there was nothing they could do for him, we finally found one willing to try a spinal cord stimulator. It worked! He was pain free and has remained so up until this year when the leads suddenly stopped working. We are now trying to find a doctor willing to go in and replace the leads. They are worried that if they get too close to the spinal cord, he could be paralyzed for the rest of his life. I say all that just to tell you how much I needed this today. I am in fight mode and have been searching the internet night and day looking for answers and new treatments or doctors who specialize in this type of surgery. I feel like I hit walls every time I turn around and I just don’t know what to do. I know God is here. He has brought us through some tremendous battles along this way but right now I just feel like He is being silent, and I can’t see the path forward. I appreciate your words and thoughts. Please know I am praying for you as well. God bless you. – Stephanie

    1. Oh wow, Stephanie, you have so much going on right now. Those are the most difficult times to be still for me it seems. I want to “help God out.” I’ve been where you are (and still there sometimes) searching for answers, and coming up empty-handed. I will be praying God feels present and in control for you and your husband as you face this ongoing issue. I know many can relate to your story of determined faith tinged with disappointment and pain. Thank you for sharing. Please keep me updated.

    2. I know someone with Arnold Chiari Malformation that was helped with Upper Cervical Chiropractic. It takes pressure off the brain stem and relieves pain. Maybe that would help your husband.

  2. Thank you Lori. I too needed to read this tonight. As both hubby and I are dealing with pain and trying to get answers in a timely fashion. I am on the list for an MRI, my date for it is the end on January 2025!
    I will keep you ladies in prayer,
    . 🙏🙏

    1. Oh Ann, I am so sorry you have to wait that long. What a testimony that you continue to pray and seek God in the hard times. Thank you for the prayers, and thank you for sharing!

  3. Thank you for sharing! I too, have learned the truth of being still 🙂 it’s wonderful to just rest in Him. To stop striving and begging. To KNOW that He is God.

    1. Brenda, being still is something I never thought I’d value. God used heart failure to show me the importance of it. Great to hear from others who have found value in being still and found God there. I have been encouraged today by your comment, and I know others will be as well. Take care!

  4. Hi Lori, thank you for this beautiful reflection. Being still is so hard, especially the way we were raised, and especially with the dad we had! He certainly was not one to be still. But it is so important in the spiritual life. Thank you for your witness and for your time and effort in sharing your inspirations with so many of us.

    1. So true, Brad. Though Dad taught and lived out many valuable lessons for us, stillness was not one of them! I’m learning to appreciate the importance as I incorporate more of it into each day (perhaps out of necessity). Thank you for the example you’ve always set for taking time and being still.

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