Weeds and Warnings, Part I
This week I am preparing for a speaking event and next week I will be at the Cleveland Clinic for a heart check. So I am taking this opportunity to post a piece that was selected and originally appeared on the Kindred Mom website a few weeks ago.
It tells the story of my own disease, since many of you have asked for more details. But primarily, I wanted to share it to support the behind-the-scenes efforts of two organizations I work with that have been part of my life-saving team. The American Heart Association and WomenHeart both help prevent heart disease with the indispensable tool of awareness. Someone once said, “The better awareness, the better your choices. As you make better choices, you will see better results.” That is my prayer for all of you, in all areas of your life. And that is my hope in sharing this with as many as possible.
Part I will run this week, and Part II will conclude the piece next week. Please drop me a line in the comments section and let me know what you think. And most of all, share it with anyone who might need a nudge to be more aware.
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“Welcome to Maggie’s Flower Shop!” The banner was artfully hand-lettered and decorated, hung on the patio, waiting for the second grade gardeners to arrive. My daughter loved helping me with flowers and plants, and I was flattered that she asked for this birthday party when she turned seven. I worked weeks to purchase tiny clay pots and seed packets, mini gardening tools and potting aprons. I prepared flower treats and garden games. I even finished ahead of schedule that afternoon, but then I heard the worst sound: a crack of thunder.
I ran outside to see a menacing sky and super-sized raindrops starting to fall. With less than two hours until guests arrived, my mind raced, Where would we have the party? This potting party promised to be messy and nothing was planned for indoors. I called my friend for advice. “What does your garage look like?” she asked. We both knew the answer. It was a crammed-full hiding hole for everything my family of five thought we might want “some day.” But this determined mom knew what I had to do, so I worked feverishly to move, clean, and arrange the entire garage by myself to beat the afterschool party deadline. About an hour in, I realized I was completely out of breath; my heart was pumping strangely hard inside my chest, unable to relax. I thought, Well, raising a third child sure is different from the first time around.
A seed was covered by the dirt of ignorance.
Although that was my first real indication of a problem, it wasn’t my last hint. As a work-from-home mom, I taught college business courses in the evenings. I thought my heart pounding ferociously was what everyone else described as their “heart beating out of their chest” amid the fear of public speaking. It happened every class as I began to teach. I started to expect it.
The seed began to germinate in the darkness.
When my oldest entered high school, parents attended the first day of school with their students. Dressed in my coolest (and daughter-approved) mom attire, I struggled noticeably to climb the stairs to the second floor between classes. Other parents sailed past me on both sides while my daughter waited at the top of the stairs. I vowed to get in better shape before this time next year.
A sprout began to emerge from the soil of the everyday.
Then on the family mission trip to Mexico, we took a day to visit pyramids. People my parents’ age were scaling the monuments while I simply could not. I attributed it to the altitude. My marathon-running husband whispered to me at the site, “Something is wrong here. You should see a doctor. “ I rolled my eyes and directed him and my athletic daughter and son to go up to the top, and I took their pictures from below.
The weed had grown leaves behind the excuses.
The next year our bucket list trip to the Grand Canyon was marred by me almost not making it back from a very short descent into the canyon. I took two steps at a time and stopped, shaking, praying to just make it up to the parking lot. My family started suspecting something was seriously wrong. I blamed it on the few extra pounds I had gained in my 40s. I was disappointed with myself that I wasn’t down to the weight I wanted to be. Still, I was not overweight and it concerned me that many others heavier than me were enjoying the hike and looking at me sympathetically.
The irritating weed was beginning to form roots.
During the summer, I decided to do a Couch to 5K with my daughter. As a surprise to my husband. Envisioning us as fit, running, empty-nesters one day, I printed the schedule and mapped out my course. The first time I jogged 25 yards, my heart beat uncontrollably. I gasped and coughed to breathe. I tried to take it slower, I tried to walk it. I convinced myself I was too out of shape for the plan. So I quit.
The ugly growth had developed to maturity.
Three months later I nearly died from heart failure: idiopathic dilated cardiomyopathy.
(Read Part 2 here.)
Wow. Lori, I had no idea symptoms had appeared that long ago. I learn much from your writings…not just about your illness, but about God, unwavering faith, and what that looks like when detoured. Thank you for sharing yourself with so many. Much love and admiration,
I had no idea, either. I wish I had. Life always makes so much more sense in retrospect! Thank you for your kind words and faithful reading. You and Scott have always been faith giants to Dell and I, and we love hearing from you.
Hard to hear this, Lori, makes me sad. But so glad that you’ve made the best of this journey.
I hope by sharing it, someone else recognizes the symptoms earlier. It is a sneaky condition.
Lori I had no idea how long you have struggled with this – hindsight is 20/20 right? I’m so glad you are here to tell your story! You are an inspiration! ❤❤❤
Thank you, Sherri. I love hearing from you! I had no idea all those years, either. I honestly thought I was just growing older. I hope this reaches someone who might be able to recognize the symptoms sooner than I did.
Oh my gosh… what a story! I had no idea the “whispers of something wrong” had been gnawing at you for so long!!!! Looking forward to Part two!
Thanks, sweet Donna! One of the many times I should have listened to my husband. I think I was a little afraid to know, too.
Lori, I am always behind in my reading but I do get to read them,. This is exactly what I would have done and do now, I blame everything and anything on being overweight. . Am going to read part 2 now.
You are such a good writer and I have learned so much reading your blog
Thank you, Nancy. It’s so much easier to see things in hindsight. I had no idea but I should have been more proactive. I hope others can learn from my experience. Great to hear from you!
Lori,
I ran across your amazing story this morning. I am also a heart recipient of 16 years, 4 months and 11 days @ Cleveland Clinic in Cleveland Ohio. Thank you for your words.I’m not as eloquent as you are, but I’ve written own blog for over 14 years!
I have volunteered @ CCF (Cleveland) since 2008, minus about 28 months as the pandemic wouldn’t allow to participate.
So nice to “meet” you!
Hi Don! Thanks for reaching out. So grateful to meet another heart patient, especially one connected to Cleveland Clinic. (My cardiologist there wrote the Foreword to my book.) I will be checking out your blog. Take care!